science

Little Mermaid Update

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Milagros Cerron, Peru’s very own little mermaid, turned 2 and to that I say “mazel tov!”. She is basically doing fine – all things considered – and literally is a walking miracle (milagros means miracle in spanish and she has taken her first steps).

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I know a number of readers, especially for some reason teenage girls in the UK, have been interested in tracking her progress and have left well wishes on WGTCTIP2. After the jump, feel free to read the CNN article about her.
Via Phyl
Peru’s ‘Little Mermaid’ making strides at 2: Doctor says girl should be able to walk on her own by year’s end
LIMA, Peru (AP) — Smiling, blowing kisses and taking small assisted steps, Peru’s “miracle baby” celebrated her second birthday Thursday, nearly a year after doctors successfully performed risky surgery to separate her fused legs.
Milagros Cerron, whose name means “miracles” in Spanish, was born with a rare congenital defect known as sirenomelia, or “mermaid syndrome.”
The condition is almost always fatal, but Milagros has not only survived but also grown into an alert, vivacious little girl who can pull herself from a seated to a standing position.
“We have managed to develop the muscles in the inferior extremities,” said Dr. Luis Rubio, head of a team of surgeons who operated on her in June. “The girl can now stand by herself and has started taking her first steps.”
He predicted she would be able to walk on her own by the end of the year.
To demonstrate her progress, Rubio held the child’s hands as she took small, shuffling strides during the party in the public hospital where her surgery took place.
He said that on May 25, Milagros will undergo another operation to separate a remaining 2 inches (5 centimeters) of fused tissue just below the child’s groin.
“That will permit the child to perfectly take a long step,” he said.
She will need 10 more years of reconstructive surgeries and rehabilitation, he said.
Milagros’ hips are narrow and small, and she has a deformed left kidney and a small right one located low in her body. In addition, her digestive and urinary tracts and her genitals share a single tube.
Dressed in a hot-pink shirt and blue jeans, Milagros enthusiastically blew out candles on a birthday cake shaped like the Walt Disney character “Little Mermaid,” the nickname she is known by in Peru.
Born with her legs fused to the ankles and her feet splayed, she resembled one of the mythical sea creatures before her operation.
Rubio said Tiffany Yorks, a 17-year-old American girl, was the only other person known to have undergone a successful surgery to correct the rare congenital defect, which is almost always fatal within days of birth.
Milagros is small for her age, about the size of a 1-year-old, and all of her time spent with physicians has taken a toll.
A team of speech specialists are now working with her to assure her linguistic skills develop normally, Rubio said.
“It is normal that a child says ‘mama’ at the beginning, or ‘papa,’ but the girl instead of saying ‘mama’ was saying ‘doctor.’ Her first word was ‘doctor,’ ” Rubio told The Associated Press.
But Milagros’ mother did not appear concerned with the detail.
“She does everything. She is a normal girl in her activities,” said Sara Arauco, 21, who gave birth to Milagros in a hospital in Peru’s Andes mountains. “The only thing is the small problem with her legs, and that’s nothing because everything else is normal. She knows more than 50 words.”

ramblings

The Real Little Mermaid

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I thought I had seen it all and then a friend sent me a link. Straight from South America, I present to you a a real live baby “mermaid”:

Her name is not Ariel, it is Milagros Cerron and she does not live “under the sea, under the sea, darling it’s better, down where it’s wetter, take it from me, up on the shore they work all day, out in the sun they slave away, while we devotin’ full time to floatin’, under the sea!” She lives in Peru.
After the jump, read the entire story about her from Reuters. It’s fascinating.

Thanks Phyl!

Peru’s Rare ‘Mermaid’ Baby to Have Risky Surgery

2/2/2005 by Jude Webber

Nine-month-old Milagros Cerron — her name means miracles in Spanish — is one of only a handful of the estimated 1-in-60,000 to 100,000 people born with sirenomelia, or mermaid syndrome, to have lived more than a few hours, experts say.

For Luis Rubio, the doctor leading the Peruvian team that will cut her legs apart in Lima on Feb. 24, the past year has been a crash course in tackling a condition he had read about in textbooks but never expected to have to treat.

Doctors believe there may only be one other surviving “mermaid” — 16-year-old American Tiffany Yorks, whose legs were separated when she was a few months old.

Experts say sirenomelia is about as rare as conjoined twins but is nearly always fatal because most sufferers lack kidneys or have other complications.

“It is very, very rare,” said Prof. Pierpaolo Mastroiacovo, director of the Rome-based International Center of Birth Defects. “The presence of renal agenesis (absence or imperfect development) makes survival very rare and improbable.”

From the waist up, Milagros smiles and babbles like any healthy infant. Below the waist, her stomach merges seamlessly into her legs, which are joined all the way to her heels.

With her tiny feet splayed in a ‘V’, the impression of a mermaid’s forked tail is complete.

The bones of both legs are visible and move separately, “as if she wanted to get free of this sack,” Rubio said.

He took on Milagros’ case when she was two days old and is treating her in a City Hall-funded mobile “solidarity hospital” run out of old buses in a poor northern district of Lima.

‘TOTAL DESPAIR’

Milagros’ father, Ricardo Cerron, 24, appealed for aid when she was born on April 27, 2004, in the Andean town of Huancayo, around 200 miles east of Lima.

“I thought it was something horrifying” he said, recalling his reaction on seeing his daughter. “I was in total despair.”

Her legs have separate cartilage, bones and blood supplies, and she has one good kidney. Her heart and lungs are fine.

Milagros, who weighs 17 lbs (7.5 kg) and is 24 inches (60 cm) long, has a rudimentary anus, urethra and genitalia all located together.

Doctors will insert three silicone bags filled with saline solution between her legs on Feb. 9 and gradually add liquid to stretch the skin to cover exposed wounds once they are cut apart, centimeter by centimeter.

“I have faith it will all go well,” said Milagros’ mother, Sara Arauco, 19.

But Mutaz Habal, the doctor who began treating Tiffany Yorks when she was one hour old and helped pioneer the separation technique, said it was hugely risky.

“My only desire is to have another survivor,” he told Reuters. He said he did not know of any besides Tiffany.

Tiffany, who lives in New Port Richey, Florida, walked for six years after her separation surgery but is currently wheelchair-bound after an accident. “I have the highest hopes that (Milagros) is going to go on for a long time,” she said.

“We want to dream that she could one day run or ride a bike,” Rubio said. “But if we could just give her the ability to be independent, that’s enough.”